Our privacy commitment
What is personal information?
Personal information means information or an opinion about an identified individual, or an individual who is reasonably identifiable:
* whether the information or opinion is true or not; and
* whether the information or opinion is recorded in a material form or not.
The types of personal information we collect may include your name, date of birth, gender, contact information, credit/debit card information, health information and other information about your history with, or relationship to the Chronic Illness Alliance.
Whose personal information do we collect?
We collect personal information from people who are connected to our operations and activities - including employees, donors, participants in online education, research study participants, recipients of our services, participants in advocacy campaigns or health promotion projects, health professionals, suppliers, volunteers and service providers.
How do we collect your personal information?
Where possible, we will collect your personal information directly from you. This may be in person (for example, where you purchase a service, product or attend an event), on the telephone (for example, if you contact us), or online (for example, if you sign up for an event online).
We may also obtain personal information from third parties such as contractors, list vendors, health professionals, employers, social and community workers. If we collect personal information about you from a third party and it is unclear that you have consented to the disclosure of your personal information to us, we will take reasonable steps to contact you and ensure that you are aware of the circumstances surrounding the collection and purposes for which we collected your personal information.
Our services are not directed to persons under 18 and we do not knowingly collect Personal Data from anyone under 18. If we become aware that a child under 18 has provided us with Personal Data, we will delete that information as quickly as possible. If you are the parent or guardian of a child and you believe they have provided us with Personal Data without your consent, then please contact us.
Any information you choose to make publicly available, such as blog comments and testimonials on our website, will be available for others to see. If you subsequently remove this information, copies may remain viewable in cached and archived pages on other websites or if others have copied or saved the information.
Why do we collect your personal information?
We may collect your personal information for a number of purposes, including:
* Marketing: to communicate with you about products, services, campaigns, causes and events
* Services: to provide you with information and training services, and to evaluate and report on these services
* Research: to social / behavioural research in relation to chronic illness and/or our service provision
* Health promotion: to provide you with information about health risk factors and to seek your support for campaigns
* Volunteering and other support: to enable you to assist us with volunteering, advocacy and other activities where we seek the community's assistance
* Other issues: communicating with you in relation to our operations, activities and objectives, to verify your identity, to improve and evaluate our programs and services and to comply with relevant laws.
Where we collect your personal information for a specific purpose not outlined above, we will provide you with a collection notice which explains the primary purpose and any related secondary purposes for which we are collecting your personal information.
Health information and other sensitive information
As part of administering our services, we may collect health information and other sensitive information. For example, we may collect medical history information from you, as it relates to research. Sensitive information includes the following type of information: racial or ethnic origin; political opinions; membership of a political association; religious beliefs or associations; philosophical beliefs; memberships; sexual orientation; genetic information; biometric information; biometric templates. We will limit the collection of sensitive information to the minimum amount required to perform our services.
What happens if you don't provide all this information?
If you do not provide some or all of the personal information requested, we may not be able to offer you services or provide you with information about our training, events, programs and projects.
Using a pseudonym or engaging with us anonymously
Where practicable, you will be given the opportunity to engage with us on an anonymous basis or using a pseudonym.
Website usage information and cookies
A cookie does not identify individual's personally, but it does identify computers. You can set your browser to notify you when you receive a cookie, and this will provide you with an opportunity to either accept or reject it in each instance.
We may gather your IP address as part of our business activities and to assist with any operational difficulties or support issues with our services. This information does not identify you personally.
Opting out of direct marketing communications
Where we use your personal information to send you marketing and promotional information by post, email or telephone, we will provide you with an opportunity to opt-out of receiving such information. By electing not to opt-out, we will assume we have your implied consent to receive similar information and communications in the future. We will always ensure that our opt-out notices are clear, conspicuous and easy to take up.
If you do not wish to receive direct marketing communications from us, please contact us at Level 1, 650 Mount Alexander Road, Moonee Ponds Vic 3039, Tel: + 61 420 675780 and email: email@example.com.
To whom does the Chronic Illness Alliance disclose your personal information?
We may need to disclose your personal information to others in order to carry out our activities. This may include, but not be limited to:
* External support services: to health care professionals, lawyers, other professionals, counsellors, funders, financiers, co-ordinators, volunteers, service providers, agencies and not-for-profits that provide support services.
* Researchers to conduct research studies related to the provision of services or in general social / behavioural studies around safe sleeping practices.
* Third parties for marketing purposes: we may provide your contact details to other like-minded organisations to contact you with information that may be of interest to you. From time to time, we may participate in data collectives where we share your personal information (other than sensitive information) with other organisations.
* Contractors and service providers who perform services on our behalf, such as mailing houses, printers, information technology services providers (including offshore cloud computing service providers), database contractors and telemarketing agencies.
* Legal Requirements where disclosure of information is ordered by a court or is subpoenaed in relation to third party litigation.
Wherever we propose to disclose your personal information to a third party not outlined above, we will provide you with a collection notice which explains the circumstances in which we might disclose your personal information.
Cross-border disclosures of your personal information
We use data hosting facilities and third party service providers to assist us with providing our goods and services. As a result, your personal information may be transferred to, and stored at, a destination outside Australia, including but not limited to New Zealand, Netherlands, China, Singapore, Hong Kong, Ireland, Canada, United States of America and the United Kingdom.
Personal information may also be processed by staff or by other third parties operating outside Australia who work for us or for one of our suppliers, agents, or partners. We take such steps as are necessary in the circumstances to ensure that any overseas third party service providers we engage do not breach the Australian Privacy Principles or General Data Protection Regulation (EU) 2016/679 ("GDPR"), including through contractual arrangements.
Where is your personal information stored?
We take all reasonable steps to protect all of the personal information we hold from misuse, interference and loss, and from unauthorised access, modification or disclosure. Your personal information will be stored on a password protected electronic database, which may be on our database, a database maintained by a cloud hosting service provider or other third party database storage or server provider. Backups of electronic information are written to drives which are stored on a backup virtual server.
Hard copy information is generally stored in our offices, which are secured to prevent entry by unauthorised people. Any personal information not actively being used is archived, usually for seven (7) years.
Where personal information is stored with a third party, we have arrangements which require those third parties to maintain the security of the information. We take reasonable steps to protect the privacy and security of that information, but we are not liable for any unauthorised access or use of that information. Your personal information will stay on the database indefinitely until you advise you would like it removed, unless we de-identify it or destroy it earlier in accordance with privacy law requirements.
Your direct debit or credit cards
We use Secure Socket Layer (SSL) certificates which is the industry standard for encrypting your credit card and debit card numbers, your name and address so that it cannot be viewed by any third party over the internet. Your financial information is encrypted on our servers and access to this information is restricted to our authorised staff only.
Access to your personal information
We will, upon your request, and subject to applicable privacy laws, provide you with access to your personal information that is held by us. However, we request that you identify, as clearly as possible, the type(s) of information requested. We will deal with your request to provide access to your personal information within thirty (30) days and you agree we may charge you our reasonable costs incurred in supplying you with access to this information.
Your rights to access personal information are not absolute and privacy laws dictate that we are not required to grant access in certain circumstances such as where:
* access would pose a serious threat to the life, safety or health of any individual or to public health or public safety
* access would have an unreasonable impact on the privacy of other individuals
* the request is frivolous or vexatious
* denying access is required or authorised by a law or a court or tribunal order
* access would be unlawful, or
* access may prejudice commercial negotiations, legal proceedings, enforcement activities or appropriate action being taken in respect of a suspected unlawful activity or serious misconduct.
If we refuse to grant you access to your personal information, we will provide you with reasons for that decision (unless it is unreasonable to do so) and the avenues available for you to complain about the refusal.
Participants in research studies should note that access to personal information is not generally granted, in accordance with the first exception above. This is notified to you, where applicable, at the time of committing to the research study.
Updating your personal information
You may ask us to update, correct or delete the personal information we hold about you at any time. We will take reasonable steps to verify your identity before granting access or making any corrections to or deletion of your information. We also have obligations to take reasonable steps to correct personal information we hold when we are satisfied that it is inaccurate, out- of-date, incomplete, irrelevant or misleading for the purpose for which it is held.
If you require access to, or wish to update your personal information, please contact us at Chronic Illness Alliance, Level 1, 650 Mount Alexander Road, Moonee Ponds Vic 3039, Tel: + 61 420 675780 and email: firstname.lastname@example.org.
We endeavour to respond to complaints and queries within fourteen (14) days of their receipt. If you are dissatisfied with our response, you may refer the matter to the Australian Information (Privacy) Commissioner (seewww.oaic.gov.au).
If you do not provide some or all of the personal information requested, we may not be able to offer you services or provide you with information about our causes, events, programs and projects.
Updated: 24 June 2019